
I’m Steve, 34 years old, married and father of little boy. You can’t tell from my picture here, but I suffer from a horrible chronic disease.
I’m a cluster headache patient for over 13 years, but only in 2007 I was diagnosed as such after suffering two daily attacks for a week. It was only then that I first went to my GP, who sent me to a neurologist. The neurologist immediately diagnosed my condition as cluster headache.
Since then my condition gradually worsened and somewhere in 2012 I transitioned from episodic to chronic cluster headache.
On this blog I hope to post regularly about how I live with this terrible condition and how I got where I am now. I will also try to explain a bit about the disease itself and about the treatments I have had and currently have. I’ll also try and assess how effective those treatments are for me personally. I will also post about how I stand in life coping with the disease and how it influences me personally and professionally. Because of my condition I can’t say when I’ll post, but I’ll try to write some stuff whenever I’m able.
I hope to be able encourage fellow cluster headache patients and I’m sure a lot of what I’ll write will sound familiar to other clusterheads.
To conclude: If you’re a cluster headache sufferer or you know someone with cluster headache, make sure to check here regularly for interesting information. Thanks for taking the time to browse this website!
Steve